Mara’s list of NurOwn responders

I’ve been making little “notes to self” every time I come across someone who describes themselves as a responder to NurOwn. By my count there are at least 14, but probably many more as these are just ones I stumbled across (it’s only been tried on something like 150 people w/ 50% placebo!)

4 thoughts on “Mara’s list of NurOwn responders

    • So sorry for the very long lag time in approving your comment. Not sure how I missed the notification! Thank you for your comment. I did just add the rabbi this a.m. (then I saw this post, quite a coincidence!)

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  1. BCLI NurOwn trial recipients:
    Healey Center ALS Mass General [Boston MA]
    1. David Neufeglise 41 M Mechanical Engineer & Dr Mallika Marshall, Dr Merit Ester Cudkowicz (April 2018) https://m.youtube.com/watch?v=hFFSNZGq_CI
    2. Raziel 46 F (Jan 2019)
    3. Mark Bedwell 57 M [Arkansas] ~ Went to FDA meeting in 2019 (April 2018). https://m.youtube.com/watch?v=4uOJo7zXhOQ
    Passed:
    1. Mark Harrison [Clover]UCI May 2018, Passed Aug 2018

    2. Rabbi Rafael Shmulevitz & Professor Dimitrios Karussis @ Neurology Department Hadassah Medical Center Jerusalem [Mayo Clinic Minnesota] July 2012; Passed Jan 2016

    —————————
    UCI – University California Irvine Research [Neuromuscular Disorders: The BrainStorm StemCell Trial to Treat ALS Speakers: Tahseen Mozaffar MD & Namita Goyal MD

    Annie ALS
    Thurman Maynard
    Matt Bellina
    Craig Reagan

    https://uniqueaccess.com/
    —————————————————
    MS – Multiple Sclerosis
    Malia Litman
    Professor Dimitrios Karussis @ Neurology Department Hadassah Medical Center Jerusalem
    Fall 2016, 2017 – 4 treatments
    http://hadassahinternational.org/malias-18-year-odyssey-ms-back-life-knew/

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    • Hello Ren,
      Thank you for the info. I think I have everyone you listed on my list except for Raziel and Annie ALS. Do you have a link to info on how NurOwn slowed down their ALS progression? If so I’ll add them to my list to make definite persons 15 and 16 (or possible persons 17 and 18)!
      Mara

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