This site is about living with ALS. The above picture is of my grandfather and his family, who farmed on the Front Range of Colorado. They were the kind of strong you can only get from being hardworking, innovative, and tenacious. You need these farmstrong traits to be successful in tackling a disease like ALS.

My wife and I aspire to be farmstrong as we devote our scant free time to these ALS-fighting initiatives:

  • My wife and I are working with I AM ALS, an amazing organization making serious progress on the initiatives we care about most.
  • I have been working on some mapping projects using Esri technology:
  • I’ve been working to get Act for ALS passed.
  • My wife has been fighting for patient access to NurOwn since 2016. Join her fight on her Twitter feed.
  • My wife has been following Dr. Bedlack’s reversals and tracking the supplements and practices that are used by multiple reversals. Watch her YouTube reversal playlist.
  • I’m working on a project to help folks stay in motion. For me, staying in motion helps to minimize the impact of this disease. For example, I work with a personal trainer to stay in motion, which helps with joint health, range of motion, and overall energy management. We’ll be sharing videos of my workouts soon.

You might find tips in our blog helpful, like our lung health table. My wife also just started a YouTube playlist with the first video being about trach types.

Here’s my wife’s version of my story. Here are two fall 2021 stories on me: Greeley Tribune article and Esri article.